Multi-Act is an European Commission-funded project. The tools it created will help you increase positive impact of your research initiative on people living with brain disorders.
In the MULTI-ACT, we have created the Collective Research Impact Framework (CRIF). At the heart of the CRIF lies the concept of co-accountability: it assesses impact of research in multiple areas, from multiple stakeholders’ perspectives. The key areas of impact assessment are economic, social, excellence, efficacy and patient-reported dimensions. Incorporating patients’ knowledge through engagement is crucial if you want to maximize research impact. Additionally, CRIF designed a set of flexible governance recommendations which allow your initiative to meet the different (and sometimes competing) needs of the stakeholders involved in the research process;
CRIF includes also Governance Criteria which facilitate governing you initiative in a participatory way, with a focus on patient engagement. Following our governance recommendations, you will stay on course to achieving your mission and agenda.
Patient engagement permeates all elements of CRIF: we believe that incorporating patients’ knowledge and experience is crucial to producing excellent research and maximizing its positive impact on the patients and the society in general.
The key areas of impact assessment described in the Master Scorecard are economic, social, excellence, efficacy and patient-reported dimensions.
CRIF can be used by performing and funding health research initiatives that are currently taking a multi-stakeholder approach to increase the co-accountability of health research. Initiatives that are not yet following that path but that are interested in doing so can also benefit from the MULTI-ACT Toolbox through the guidance it offers to develop and improve multi-stakeholder research initiatives.
If you are a pharmaceutical company, multi-stakeholder research initiative, research institute, health products or services company, a patient organisation, a brain health-focused NGO, a university, a neurology hospital department… then you probably want to learn more about what we offer. .
The MULTI-ACT Toolbox provides you with a set of tools that will help your multi-stakeholder health research initiative put patient engagement at the heart of its operations. They will help you assess and improve your governance system, create a patient engagement plan that will fit your needs and capabilities. MULTI-ACT offers a wide range of indicators for all key dimensions of impact.
…is a simple and fast way of assessing to what extent your initiative is already compliant with the Governance Criteria. This questionnaire will also tell you which gaps in your management structure and operations you need to address. It will you provide you with a customised set of simple recommendations which will help your research initiative to fully adopt participatory practices, deep patient engagement, excellence in doing science. And not forget about the financial sustainability!
… is a way for you to never again struggle with patient engagement. Thanks to Multi-Act Patient Engagement Guidelines, it will be easy for you to decide which stakeholders to engage and how much decision-making power to give them. We understand that these factors change depending on the research stage, and we have created a Research and Innovation 7-steps Path to deal with that.
Thanks to the Patient Engagement Plan, you will fast build a strategic stakeholder engagement plan. It also provides a set of quantitative and qualitative indicators which make it easy to monitor and report your progress. It will become clear how much your research gains on engaging the patients.
…makes materiality analysis and stakeholder engagement easy. Thanks to this advanced tool, you will be able to invite your stakeholders to directly engage in the process of choosing which aspects of your activities should be assessed in terms of impact. The tool ensures anonymity and balance of power of stakeholder groups, so you do not need to worry about them. Together you will decide what matters most. The areas to assess are already mapped for you, together with relevant indicators, so you can be sure you will not miss anything important.
… is a collection of 125 indicators which you can use to assess and monitor the impact of the research your initiative conducts. Through the Materiality Analysis, you and your stakeholders will create a customised scorecard. The indicators are grouped into five strategic dimensions: efficacy, economic, (research) excellence, social and patient-reported. This ensures that all important areas are covered. Each indicator is described in detail, so you will have no problem figuring out how to approach data collection and measurement.
The Toolbox contains many tips and explanations to help you go smoothly through the process. It is enough to follow the steps in the Toolbox. However, we recommend reading the CRIF Manual before starting with the Toolbox. The Manual explains in-depth the role each of the Toolbox tools plays in the framework.